However, if one looks at science, there is still a lot to be done: There are no large data analyses that provide a uniform overall picture for the pathophysiology or therapy of HC. In particular, the question of the factors that influence HC patients positively or negatively in everyday life has hardly been investigated.
The research project behind HC&ME offers for the first time the opportunity to study hydrocephalus outside the clinical setting and to share the results with the public. With the anonymous data transfer of patients themselves, we may be able to answer certain questions in a completely new way:
Which symptoms are associated with which activities of daily life?
In the context of hydrocephalus therapy, which everyday factors influence the quality of life of a group of affected persons?